The Australian STXBP1 Foundation was founded in 2023 by a group of families dedicated to raising money and accelerating research to find a cure for STXBP1 disorders. We are a 100% voluntary-run organisation thanks to the tireless efforts of our families, supporters and a committed Board. We are all tremendously proud to serve this organisation and are dedicated to working relentlessly on fulfilling its mission.
100% voluntary-run with DGR status
STXBP1 Australia Limited is a not-for-profit charity, registered with the Australian Charities and Not-for-profits Commission, which has been endorsed by the ATO as a Deductible Gift Recipient.
Meet our Board members
Benjamin Shipley — Chairman
Alexandra Race — Secretary
Manjula Kumar — Treasurer
Lauren Jensen — Research Lead
Angela Lucas — Fundraising Lead
