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STXBP1 Australia
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Donations over $2 are tax-deductible

Every child deserves a future free from STXBP1 disorders.

We fund Australian research and stand beside every family living with this rare genetic disorder.

Donate now Meet the families
A family affected by an STXBP1 disorder, smiling together.
35+
families supported
35+
Families in Australia
85%
Present with epilepsy
5th
Most common epilepsy gene
100%
Funds go to research

Get involved

How you can help

Every contribution moves us closer to a cure. Choose the way that suits you.

Donate

Fund the research that will change our children's futures.

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Fundraise

Run, walk or host an event for STXBP1 Australia.

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Sponsor

Partner with us at an event and reach a caring community.

Enquire about sponsorship →

Volunteer

Give your time and skills to the cause.

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Our work

Behind every gift

A child living with an STXBP1 disorder.

Meet the families

Real children and real families, at the heart of everything we do.

Read their stories →
STXBP1 research in the laboratory.

Our research

A clear three-step pathway from biomarkers to a cure.

Explore the science →
A welcoming message for newly diagnosed families.

Newly diagnosed?

A warm welcome and the support you need from day one.

Start here →

"The day we found our community, we knew our daughter wasn't facing this alone."

A Queensland family, newly diagnosed with an STXBP1 disorder

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